Hi everyone! I hope you are all ok, sorry, I know I've been quiet lately, I have been doing quite well on Mestinon and had found a pretty good balance....okay, I wasn't back to pre-MG but I was doing pretty okay and managing to take my girls to see Christmas lights etc...which was lovely!

However....we booked a 4 day trip to Disney before my MG resurfaced earlier this year and I had been very apprehensive about how I would manage and it seems I was right to be worried. I did pretty well the first and second day and had a lovely time with my little girls doing better than expected given the walking etc BUT the third day hit me like a train! Mestinon was only kicking in for 2 hours max and my crutches had to come out as my legs got weaker and weaker, I began to feel really queasy/sick, lost my appetite and just felt giddy and drained -which I have felt when I've over done things before, except this was constant not just later in the day as it had been before?? The day we came home I felt very weak and queasy, my mestinon kicked in better for some doses than others and I was just relieved to make it home!! That was Sunday and I have done nothing but rest and sleep since - the queasiness is settling a little although it is still there BUT my main worry is that my mestinon is still not working as it did Some doses kick in for an hour or so (I usually get around 4 hours from 60mg which I take 4 times a day) and some doses hardly at all!! I thought I would be improving with the rest but it doesn't seem to be the case....am I expecting too much? Do I just need to be patient and take more time off work to rest or should I be concerned that mestinon isn't working??

I would be so grateful for any help or advice as I don't want to take the long trip to my Neuro just to be told I need to rest more??

Eve.x