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Old 12-28-2013, 09:11 PM #1
huntress huntress is offline
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Join Date: Jul 2012
Posts: 104
10 yr Member
huntress huntress is offline
Member
 
Join Date: Jul 2012
Posts: 104
10 yr Member
Default been awhile

Hi,
It's been awhile since I last logged on here. I think it was almost back in March or late April right after my Crisis/Pneumonia hospitalization time. I am currently taking azathioprine which is (Imuran) the generic brand. 4-5 times a day still on Mestinon, and taking Prednisone. Trying to taper Prednisone truthfully. I started Prednisone 60mg daily in March in the ICU. Neurologist has me on a alternate day schedule. 50 then 0, been on that since late November. This taper has really got to me, it's why I am staying on 50/0 it till I see him in February. I've been really tired, fatigued...MG has been flaring. Droopy eye, weak tongue, bad speech + more. I think it's from the taper. Which is really literally draining me. I felt good or halfway there when I was taking 60/10 even 60/0 then when I hit 50/0 my body said. Ooooo no u don't...Hoping it gets better soon. Tapering Prednisone is really, really tough!
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