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Old 01-23-2014, 11:40 AM #1
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I have not been diagnosed yet. I do have all of the symptoms. I was wondering who all on here works and how is that going. I am not working right now because my job required lifting and I can not do it. I am in school. I have two quarters till I finish. I am having problems with it but determined to finish. I will be working as a teacher or teacher asst to young children if I feel that I can not be lead teacher because of medical issues. I was wondering what your experience is if you still working, had to quit working or had to change jobs because of mg.
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Old 01-23-2014, 02:13 PM #2
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I am techincally still a mystery as far as diagnosis goes, but LEMS is high on the list of diagnosis.. I am on the go in my job as well, and in the 6 months leading to my crash, I got to the point where I coudln't work.. I was unable to even hold my arms up to the keyboard due to shoulder weakness, I couldn't stand up for more than a few seconds, walking was difficult and talking (slurry speech) and breathlessness while talking made my job impossible.. it wasnt' until I totally crashed and ended up in the hospital getting IVIG that things turned around.. after the 2nd round of IVIG and a few weeks rest I was back at work full time again.. If I go too long without IVIG i can't function at work.. It keeps me alive!




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Originally Posted by sham0968 View Post
I have not been diagnosed yet. I do have all of the symptoms. I was wondering who all on here works and how is that going. I am not working right now because my job required lifting and I can not do it. I am in school. I have two quarters till I finish. I am having problems with it but determined to finish. I will be working as a teacher or teacher asst to young children if I feel that I can not be lead teacher because of medical issues. I was wondering what your experience is if you still working, had to quit working or had to change jobs because of mg.
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Old 01-23-2014, 04:36 PM #3
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I understand how you feel I ended up with same symptoms that you described on Christmas afternoon. I do not have a diagnosis yet.
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Old 01-24-2014, 01:07 AM #4
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I am still working after only 2 months of MG. I drive a company vehicle as part of my job and the 1st month until the right dosage of mestinol was driving one eyed. The most I drove in one day was 250 miles and I really felt that for a couple of days. But I feel like I will be able to continue working now. My muscles really ache in the evening but at least I have a paycheck coming in.
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Old 01-24-2014, 08:21 AM #5
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I am still working after only 2 months of MG. I drive a company vehicle as part of my job and the 1st month until the right dosage of mestinol was driving one eyed. The most I drove in one day was 250 miles and I really felt that for a couple of days. But I feel like I will be able to continue working now. My muscles really ache in the evening but at least I have a paycheck coming in.
That is great and I know everyone is different but it gives me hope that I will continue to work also.
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Old 01-25-2014, 07:48 AM #6
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I am still working after only 2 months of MG. I drive a company vehicle as part of my job and the 1st month until the right dosage of mestinol was driving one eyed. The most I drove in one day was 250 miles and I really felt that for a couple of days.
I can really identify with this. I drive a taxicab on the means streets of San Jose, California. Months before I was diagnosed, I would have bouts of double vision, usually towards the end of a 12-hours shift, and usually towards the end of a 5-day work week. I was terrified that this would prevent me from working. I too would have to cover one eye. I even though about getting an eye patch.

I can tell you from personal experience, that driving a taxicab one-handed, while covering an eye with the other, did not instill a lot of confidence in my passengers. One guy asked me why I keep touching my face. I told him that if he had a face that looked as good as mine, he would touch his too.

-Mark-

Last edited by Panorama; 01-25-2014 at 09:11 AM. Reason: Chronic Typos
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Old 01-25-2014, 09:11 AM #7
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I teach in a college. I have been able to keep working, but I do have some issues.

The biggest one is that my voice gives out. I have learned to pace myself at work. I give the students frequent breaks. I also have started sitting on a stool to lecture rather than standing. I have not shared why I have issues with my students and they do not question me. It is possible that they already know because it is a small school and my dean and colleagues know. Rumors fly.

Either way, I just keep on keeping on. If I quit, my financial situation will be dismal and I have people counting on my income.

I was diagnosed 2 years ago, and I am still hanging in there.
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