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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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I had a very positive visit with my neurologist. The Preds are working. I will continue on the 60 mg level for the remainder of the 30-day supply.
The Preds reduced on the following schedule:
After some time on the maintenance level, the Preds will end. At this time he will prescribe an immune suppressor and wants me to learn the relative benefits and drawbacks. He likes Cellcept. He also refereed me to some special MG group at Stanford Hospital. My neurologist said they are the experts and will know the best immune suppressor for my individual needs. He has only diagnosed 2 other patients in 5 years. I asked him if I would have been diagonalized with a negative blood test. He said no. They would move on to the other tests. Second CT scan of the abdominal reveal no problems. There is a larger than usual adrenal gland. I'll Google it later. The things that I have learned here has made a big difference. Thanks- -Mark- Last edited by Panorama; 02-03-2014 at 01:50 PM. |
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"Thanks for this!" says: | sandy56 (02-03-2014) |
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