[Stellatum]

Hi, everyone. I've been absent from this forum--just been really busy. I'm up and down, but on the whole, I think, better than I was four years ago, when I first started having symptoms. I'm on nothing but Imuran. For those who don't know me, I'm seronegative, diagnosed by my third SFEMG (first two were inconclusive). Mestinon doesn't help me, and neither, I've concluded, does IVIg. Heat doesn't bother me. I have almost no eye or eyelid symptoms. As you can imagine, I sometimes doubt my diagnosis.

This is the third spring in a row that I've improved as soon as I started sitting out in the sun. Of course I take vitamin D year-round, but it doesn't seem to make a difference. My improvement could easily be a coincidence, but I think I'll ask my neuro if he thinks it makes sense to try light treatments in the fall and winter. Do I need a medical setting, or will a tanning booth do? I think I'm supposed to avoid sun while on Imuran, but most treatments for MG are risky (including Imuran).

Any thoughts?

Abby