Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

 
 
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Old 01-31-2014, 09:31 AM #7
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sham0968 sham0968 is offline
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Join Date: Jan 2014
Posts: 95
10 yr Member
sham0968 sham0968 is offline
Junior Member
sham0968's Avatar
 
Join Date: Jan 2014
Posts: 95
10 yr Member
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Quote:
Originally Posted by mpage View Post
Hi sham098,



You have landed in a great place in this forum. There are some very knowledge people here. I've only been here a few weeks, but I have learned so much, and it has made a big difference. Another forum member directed me to a great document that is very helpful. It is available for free from the following link:

http://www.myasthenia.org/LinkClick....w%3d&tabid=125

The document is entitled Myasthenia Gravis: A Manual for the Health Care Provider. It is published by the Myasthenia Gravis Foundations of America. It is in PDF format. You can read it online using a Web browser, download it and read it offline with an Acrobat Reader, or you can have it printed and bound. I had mine printed. I will be taking it with me to my next appointment with my neurologist. I'm even going to put the PDF file on a thumb drive and give it to my doctor.

While the document is intended for healthcare professionals, there is much in it that can be helpful to us. None of us will read it from cover to cover or understand the more technical aspects. I found the sections on treatment to be especially helpful for me.

There is another recent thread on the topic:

http://neurotalk.psychcentral.com/thread200174.html

Take care,

-Mark-
yes I am so glad that I found this forum. It
is so great to talk to someone that knows what I am going through and can share what they have been through
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