tongue twitches

sham0968 · 02-02-2014, 11:57 AM

Has anybody have their tongue twitch from muscle weakness. I was brushing my teeth and I noticed my tongue twitch when I stuck it out and this is when my muscles were really weak. I put it in computer and ALS come up and I was so scared and could not sleep. My tongue does not twitch now but it did at the time only when I stuck it out. It did not twitch in my mouth at rest. At this time I was having a lot of muscle problems and ended up slurring my words. I was just wondering if anybody else have this or noticed it.

Panorama · 02-02-2014, 01:02 PM

Quote:

Originally Posted by sham0968

Has anybody have their tongue twitch from muscle weakness. I was brushing my teeth and I noticed my tongue twitch when I stuck it out and this is when my muscles were really weak.

YES! Another classic MG symptom. I'm not a neurologist, I only play one on the Internet, but I think you have MG, even with a negative blood test.

One early symptom of MG I had, but did not know, was that a few times it took more energy to close my eyes, than to keep them open. It was subtitle, but it was real. Never told my doctor. Thought it was a friction thing and got some eye drops.

-Mark-

sham0968 · 02-02-2014, 01:23 PM

So you have had the tongue twitches?

Panorama · 02-02-2014, 01:39 PM

Quote:

Originally Posted by sham0968

So you have had the tongue twitches?

Not twitches per se, but rather an extremely weak tongue and with little or no ability to move food around my mouth with it. But that does not make a difference. Each of us will have similar, not exact symptoms. They don't call it the "Snowflake Disease" for nothing, each is unique.

-Mark-

4-eyes · 02-02-2014, 02:08 PM

I have that when really weak. Technical term is fasciculation.

sham0968 · 02-02-2014, 02:36 PM

Quote:

Originally Posted by Panorama

Not twitches per se, but rather an extremely weak tongue and with little or no ability to move food around my mouth with it. But that does not make a difference. Each of us will have similar, not exact symptoms. They don't call it the "Snowflake Disease" for nothing, each is unique.

-Mark-

Yes I understand that everyone does not have the same symptoms. I guess I just was hoping someone else would say yes so I could right it off as a symptom of mg and nothing more serious, not that mg is not serious because it is.

Panorama · 02-02-2014, 02:45 PM

Quote:

Originally Posted by sham0968

Yes I understand that everyone does not have the same symptoms. I guess I just was hoping someone else would say yes so I could right it off as a symptom of mg and nothing more serious, not that mg is not serious because it is.

Make a list of all the symptoms you know to be MG. Ask the doctor why he is waiting. People can have MG with no concrete test results. That's why so many go undiagnosed for so long. I was luck. I had a positive blood test.

Ask your doctor not to wait until you have a major MG crisis event to start treatment.

See the fax I sent to my doctors to motive them. It is in the following thread, although you my have already seen it:

http://neurotalk.psychcentral.com/thread200357.html

I was astonished how quickly my doctors moved after receiving that fax. I did not even need to CC the fax to my fictitious brother-in-law Vinnie Boombatz, the noted malpractice attorney.

-Mark-

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