Hi Lois
I`m doing better. I spending some days with one of my brothers and this is helping me and him.
Hugs

STRESS??!! Ask me why I've been on disability for the last 4 years..... I survived the loss of my mother and another close relative but all it took was a negative work environment for my MG to flare-up BIG time.

If you rid yourself of the myasthenia first, most of the rest of your problems will fade away. Myasthenia is a miserable affliction and most people don't do what they need to do to make it go away...and your doctor may be the locus of the problem!

I was so severely debilitated by myasthenia four years ago that at times I couldn't walk, talk, dress myself, eat, swallow medication. I was in the worst decile, statistically for the disease. I was put on an immunosuppressant and a small dose of prednisone. I went through 17 rounds of plasmapheresis. One year ago in December, I went into a week-long coma.

It wasn't until I started on MASSIVE doese of prednisone that I finally felt I could live. I started on 100mg per day on the "on" day and 50 or so on the "off" day. I immediately responded. I am now like normal and I was at the bottom of the barrel for MG victims.

If you suffer ANY MG symptoms anymore, you may need to give this regimen a whirl. Many of the immunosupressants are worthless. DO NOT, I repeat, DO NOT listen to your doctor. Most are clueless about treatment of MG, even the finest and most studied of neurologists. Do not take no for an answer. 100 mg of prednisone will probably not hurt most people (though, they too, have side effects and you WILL need to taper and wean yourself off), but, the flipside is you may have a chance at recovery. Yuo must pull out all the stops and wage war against this miserable disease.

From,
Bottom of the barrel

Bluestone, It's been almost two years now since your brother has passed on. I am so sorry for your loss and hope you are doing okay. I have never lost a sibling and can only imagine how difficult it must be.

Curt, This person went through the loss of her brother. How could getting "rid" of the MG possibly help that? I know you have strong opinions about MG and treatments for it but this is truly an inappropriate response to the pain this person has gone through. Using her post to put forth your own agenda about MG treatments was not a very kind thing to do. Please think about what others are going through too.

Annie