Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
Reply
 
Thread Tools Display Modes
Old 03-21-2014, 01:49 AM #11
Bipedal Primate's Avatar
Bipedal Primate Bipedal Primate is offline
Junior Member
 
Join Date: Feb 2014
Posts: 32
10 yr Member
Bipedal Primate Bipedal Primate is offline
Junior Member
Bipedal Primate's Avatar
 
Join Date: Feb 2014
Posts: 32
10 yr Member
Default

I had both a Single Fiber EMG(a needle is inserted into the muscle) and an RNS (Repetitive Nerve Stimulation) test 4 weeks ago.

The Single Fiber EMG was not as bad as I had anticipated. It was not painful, but it was *very* uncomfortable. To sum it up, it is absolutely NOT pleasant.

The RNS had no needles, just magnet like thingy's, and it was also very unpleasant but not "painful."

Hope that helps! :-D
Bipedal Primate is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
southblues (03-21-2014)

advertisement
Old 03-21-2014, 02:02 AM #12
Bipedal Primate's Avatar
Bipedal Primate Bipedal Primate is offline
Junior Member
 
Join Date: Feb 2014
Posts: 32
10 yr Member
Bipedal Primate Bipedal Primate is offline
Junior Member
Bipedal Primate's Avatar
 
Join Date: Feb 2014
Posts: 32
10 yr Member
Default

I also wanted to add that the woman who did my Single Fiber EMG and my RNS-Repetitive Nerve Stimulation test, did a terribel job. I am not satidfied with her results and am planning to repeat the test at another hospital with someone who has more experience diagnosing Myasthenia Gravis.

1.) The Room was freezing, my hands were ice cold during the test.
2.) She only spent about ten minutes doing the Single Fiber EMG, and only tested my left arm and my left thigh. My biggest problem is the right side of my face, terrible ptosis and a severly crossed right eye. You would think that would have been an obvious place to test.

From what I have read most Doctors will spend 45 minutes to an hour doing the Single Fiber EMG.
Bipedal Primate is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Does anyone have any advice? aggieteacher04 Traumatic Brain Injury and Post Concussion Syndrome 2 02-18-2011 12:49 PM
Need Advice Soozie Parkinson's Disease 2 01-27-2010 10:26 AM
I need some advice. Benstead3189 Parkinson's Disease 3 12-12-2009 09:46 PM
Need Advice Frankv Chronic Pain 3 10-20-2009 08:09 AM


All times are GMT -5. The time now is 06:12 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.