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Old 04-01-2014, 12:27 PM #1
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Maggiemayhem Maggiemayhem is offline
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Join Date: Oct 2013
Location: Prescott, Arizona
Posts: 38
10 yr Member
Maggiemayhem Maggiemayhem is offline
Junior Member
Maggiemayhem's Avatar
 
Join Date: Oct 2013
Location: Prescott, Arizona
Posts: 38
10 yr Member
Default Newly Diagnosed, Clinical Only

Hello all. I've spent the last 8 yrs searching for a dx. I suffered a head injury at that time and in less than 2 weeks I started having dbl vision. My neurologist assumed the cause was my recent head injury and only pursued that option. The frequency increased to the point that I had dbl vision with any kind of physical activity. I was an avid golfer and played 4 to 5 times a week. Before long, in addition to the vision issues, I noticed a marked weakness in my arms and legs; troubling balance and coordination as well. This became such an issue that I finally quit the game a year ago. In addition, I had to quit my participation in a performing dance group. I've gone from dr to dr ( including Mayo) with no satisfaction. Finally, I saw a neuro opthamologist and within 10 minutes he suggested MG. My blood tests have been negative as well as a repetative stimulation test. However, my new neurologist and neuromuscular dr agree that I have MG. Due to my age, 66, and the fact that I don't have ptosis,
I don't fit the usual profile of most MG patients. Maybe this is why a MG dx was overlooked for so many years. I'm so excited to have found this forum, the support and sharing of experiences will be invaluable.
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