So I have been having a flare since all the snow shoveling. I am on 20 mg of prednisone, 2000 cellcept and 660 mestinon a day. MY C reactive protein has always been high and is now back in the normal range but my sed rate is way up to 48. Do any other MGers have high CRP and sed rates or is this my other auto-immune disease (unspecified)?


thanks
kathie

Mine have always been in normal range --- and I am seroneg

I don't know about the crp, but elevated sed rate indicates inflammation somewhere in the body. Don't know that it is a Myasthenic thing or not.

From what I know with MG your sed rate and CRP should be normal.. if they are elevated it should indicate an inflammatory process of some kind.. neuromuscular wise - like a myopathy.. otherwise - it could be a million other things.. some people just run high normally maybe? Have they tested your adolase?

Adolase and creatitine kinase are normal. I was in a lot of pain - muscle, joint and tendons. My rapid bowel transit went away for 3 months when they started cellcept but returned with the pain. I also have a vascular rash on my extremities, the rheumy calls livedo reticularis. And a rash on my face constantly - looks like a butterfly to me. They did another bunch of antibody tests including ANA - all negative. But my sed rate sky rocketed, BUN is now slightly high and my urinalysis has moderate wbc, rbc and no bacteria, I am anemic again with very high RDW. I think I might have Lupus too.

They upped the prednisone to 20 mg per day. And the pain and the rapid bowel transit has subsided again. Rash looks the same.

thanks
kathie

Does anyone here have MG and Lupus? Do your symptoms and tests look like this?

tanks
kathie