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Old 04-08-2014, 02:23 PM #1
gooberoobu gooberoobu is offline
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Default MG, Neuropathy and EMGs

So, Friday I had an EMG to check for Neuropathy in my feet. I took my normal morning meds and when I got to the EMG, I was told the doctor also wanted to check how my MG was doing so they were going to check my shoulder with an EMG as well. My morning meds included a Mestinon and my shoulder came back normal as well as did my feet for neuropathy.
I wasnt told to hold the Mestinon for the test, but Im wondering if the Mestinon could have affected the neuropathy results? Im fairly certain my shoulder was normal because of it, but cant seem to find if it could mess up the Neuropathy.
Anyone know?
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Old 04-08-2014, 03:29 PM #2
mimc mimc is offline
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I had an emg while on mestinon and it showed neuropathy. I already had the neuropathy diagnosis, though, from a previous emg before I started mestinon. I am having more trouble getting the mg diagnosed. neurologists like to tell me that I can only have one or the other - nobody has mg and neuropathy. I don't believe it
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Old 04-08-2014, 06:11 PM #3
gooberoobu gooberoobu is offline
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I dont believe that either. Thats just weird. Why cant you have both?
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Old 04-12-2014, 10:42 PM #4
AnnieB3 AnnieB3 is offline
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Horse hockey!!! I have a neuropathy in my feet/lower legs and MG. My neuropathy was from my B12 deficiency not being diagnosed soon enough and not treated adequately right away.

Do doctors think patients are only alloted one condition or disease? I wish.

Read this for the symptoms, causes, testing, diagnosis, and treatment of neuropathy. A regular EMG is not necessarily sensitive enough for MG or a neuropathy.

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3086960/

Mestinon, just like caffeine, would affect an EMG.

You can find more information on the peripheral neuropathy forum here.

And if you have a neuropathy, it's important to figure out the cause of it!!! Have you had your B12 checked? If so, what is the actual number?

A neuropathy is not fun to live with. Walking a lot, bad shoes, and some foods like the MSG in tomatoes can make it worse.

I really hope you can find someone to take all of this seriously. Maybe a primary doctor is a good start, instead of going back to neurology.

Annie
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Old 04-12-2014, 10:56 PM #5
bny806 bny806 is offline
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Annie- I am interested in your B12 deficiency? I have nerve damage and now with them findindg all my vitamins low (including b12)... they think that might be the main issue with me neurologically (so we have to fix my stomach and hoepfully will then fix the absorption)... Did you do injections? I'm doing subliggual methylcolbalmin right now... they are setting up the injections - hopefully soon! But this has been going on for 3 years, so I"m afraid a lot of damage is permanent
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Old 04-26-2015, 05:14 PM #6
SoftTalker SoftTalker is offline
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Default Hi Annie

Quote:
Originally Posted by AnnieB3 View Post
Horse hockey!!! I have a neuropathy in my feet/lower legs and MG. My neuropathy was from my B12 deficiency not being diagnosed soon enough and not treated adequately right away.

Do doctors think patients are only alloted one condition or disease? I wish.

Read this for the symptoms, causes, testing, diagnosis, and treatment of neuropathy. A regular EMG is not necessarily sensitive enough for MG or a neuropathy.

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3086960/

Mestinon, just like caffeine, would affect an EMG.

You can find more information on the peripheral neuropathy forum here.

And if you have a neuropathy, it's important to figure out the cause of it!!! Have you had your B12 checked? If so, what is the actual number?

A neuropathy is not fun to live with. Walking a lot, bad shoes, and some foods like the MSG in tomatoes can make it worse.

I really hope you can find someone to take all of this seriously. Maybe a primary doctor is a good start, instead of going back to neurology.

Annie


Hi Annie,

Edited to add:

Annie, I see you have posted you are trying to avoid a crisis. I sure hope you have been able to do that.

As for my questions here, don't rush to answer. YOU come first.


I have been searching for posts about PN and MG.
I have just been dx'd with PN.

Any advice?
(See my topic started today, April 26, 2015)

Have had blood work done; now just getting checked for B12.
I took B12 innoculations many years ago; had a couple of MG crises; new internal med doc; he said didn't need to check B12.
Hmmmm......

I had been taking B12 on my own; after I had a bad reaction to a flu shot a couple of years ago. Mentioned to my internal med doc; he said no need to take it.

Thanks
SoftTalker

Last edited by SoftTalker; 04-26-2015 at 11:25 PM.
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"Thanks for this!" says:
juliejayne (04-27-2015)
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