NeuroTalk Support Groups - Mestinon Timespan

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Myasthenia Gravis (https://www.neurotalk.org/myasthenia-gravis/)

- - Mestinon Timespan (https://www.neurotalk.org/myasthenia-gravis/203138-mestinon-timespan.html)

Quote:

Originally Posted by Bipedal Primate (Post 1062731)

Please keep us updated on your Mestinon "adventures." I learn so much reading about what works and doesn't work from others! :-)

I haven't tried the 180mg Timespan yet. But am super excited and *hopeful* that it works just as well, if not better, than my 60mg 3 x day.

For me, remembering to take a pill every freaking 4 hours during the day is such a PITA :-/

Will do. However, be warned. The timespan is over $200 per mo (1xdaily)
The next few days will be trial and error. I'll update in a few days

Quote:

Originally Posted by Juanitad (Post 1062750)

When I started on the Timespan, I was advised not to break the pill even though it has a line on it. Apparently they use wax combined with the mestinon and the medication isn't always even spread throughout the pill. As a result, it may not work the same each time you take it. Just a thought.

Bipedal Primate - I tried taking the TS in the morning instead of 60 mg tablets 3 times per day, but it just didn't work for me. I think the problem was that I am a lot more active during the day and the unevenness of the release of the TS didn't cover my activities during the day - but hey, it might work for you! We are all unique!
Juanita

It seems I heard that as well when I was hospitalized last November. I'm going to check with my pharmacist friend tomorrow. I'll let you know

Jan, Is your Timespan scored? In other words, is there a score line in the middle? If not, DO NOT BREAK IT IN HALF!!!!

If it is not scored, and you break it in half, you can get all of the 180 mg. at once. You do not want to have a cholinergic crisis! Like Juanitad said, most docs don't advise doing it anyway.

Guys, you have to read the drug's prescribing information.

Mestinon Syrup can be messy (although I haven't found it to be so) and not that easy to carry around, but you can titrate the dosing far more easily.

DO NOT mess with these meds. BTW, you can't refrigerate Mestinon tablets either!

Stay safe.

Annie

Quote:

Originally Posted by AnnieB3 (Post 1062756)

Hi Annie. Yes, the timespan tablets are scored. I took half last night but when I woke up this morning my vocal chords and bladder muscles were very weak. In addition, I had pronounced weakness in my right leg. Conclusion reached, I don't believe this solution worked very well for me.
I think I'll follow through with my plan of taking 60mg 3x daily, then a whole timespan at night. If my twitching symptoms return, I'll lower my dosage to 45mg 3x daily with a timespan at night.
Back to trial and error:)

About once a year, I have a brain freeze and forget to take my nighttime meds. When I get up in the morning, I immediately realize it because I am so weak. I have to take a 60 mg mestinon and rest for about 30 minutes before I can get ready for the day. Needless to say, I don't forget it again for along time. (Maybe it's a senior moment instead of a brain freeze!! LOL

Juanita

Juanita

Quote:

Originally Posted by Juanitad (Post 1062935)

I've had moments like that. Especially in the beginning when I wasn't used to taking meds every few hours. These last few months have been a real learning experience. Every day seems to bring something new.
Thanks Juanita