NeuroTalk Support Groups - new and nervous about getting diagnosis

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Myasthenia Gravis (https://www.neurotalk.org/myasthenia-gravis/)

- - new and nervous about getting diagnosis - advice required (https://www.neurotalk.org/myasthenia-gravis/203295-nervous-getting-diagnosis-advice-required.html)

Quote:

Originally Posted by Bipedal Primate (Post 1067436)

After reading you post about your success with the ice test, I tried it and it didn't seem to do anything for my annoying <ptosis> droopy eye brow and droopy eye lid. :-( I cringe, when people want to take my photo :-/
I was thinking, if this works, this would be great for family photos,------ "wait, hold that picture taking, I need to get my Icepack!" {{{LMAO}}} :-)

I used a regular icepack from my freezer, and gently pressed it on the right side of my face/ eye area for 3 minutes.

Do you know the specifics of the "clinical" icepack tests that Nueros Do? --- do you hold the icepack over the whole face or only where the ptosis is presenting? --how long are you "supposed" to leave the icepack on your face?

I just read an article that says to hold the ice pack on the affected area for approx. 2 minutes.
Hope this helps
Jan

I'm no expert - but I closed my eye and held the ice over the levator muscle for about a minute and the lid springs back upon opening the eye.

I wondered if I was doing right as well. I googled the ice test for myasthenia and found a video. It seemed like that was what they were doing in the video. Hope this helps.

You'll need to be quick with the camera though - the effect only lasts a few minutes :winky: