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Old 05-18-2014, 12:41 PM #11
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cait24 cait24 is offline
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cait24 cait24 is offline
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Location: Newtown, PA
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I have alternating high sed rate and c reactive protein. I have MG but all my specialist think I have another autoimmune issue as well. All seem to think Lupus, but my ANA is negative and the rheumy cannot make up his mind. I have livedo reticularis rash on my extremeties, sunburn rash on cheeks, anemia with spherocytes, joint, muscle and tendon pain, extreme fatigue and chronic diarrhea. They have ruled out all the other digestive autoimmune diseases. My BUN has started to go above normal and I have RBC in my urine and moderate WBC and leukocytes esterase with no signs of infections. Looks like it might be starting to affect the kidneys too.

let me know how you make out. I have been hesitant to push the Lupus diagnosis since managing MG is a fulltime preoccupation. Although all these autoimmune diseases are treated with the same drugs, it is important to know which ones you have because they affect different organs. And these organs need to be monitored by different specialist so they don't become damaged.
kathie
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