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Old 05-16-2014, 04:32 PM #6
whirlwind123 whirlwind123 is offline
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Join Date: Apr 2009
Location: ohio
Posts: 160
15 yr Member
whirlwind123 whirlwind123 is offline
Member
 
Join Date: Apr 2009
Location: ohio
Posts: 160
15 yr Member
Default Annie

I looked back at my blood work, and once in 2011 it was 38 and never addressed, since then it has been in the 80's , the blood work in January was GSR 68, and Creatinine was 1.0..Now this time GSR 41 and Creatinine is 1.03
When I was at my Rheumy the other day, he looked at the blood work and says oh your kidney and liver are good....I didn't know any difference as I didn't see my blood work till I went to my PCP, and he was concerned with the ESR rate and Is trying to get me into another Rheumy. And then I see this and my hair is standing on edge. I told both of them how fatigued I am and The Rheumy blames MG,,,,anything he doesn't want to talk about or deal with he blames on MG..... Well I won't be going to him any longer.......it is such a shame there are so view Rheumys. I will be going to my Neurologist in June, back to my PCP end of June, I actually think I will call the Rheumy Monday and say...Hey I thought you said my Kidney functions were fine....I just don't understand the medical field any more....so Confused, Thank goodness for you Annie..






Quote:
Originally Posted by AnnieB3 View Post
Thanks, Nancy! Now I won't forget again.

Since your GFR, which is usually calculated, is low, you should immediately consult with a nephrologist. Don't be worried, however, since you are on those drugs and the kidneys filter waste products from the body (including drugs), you can't be too careful!

My dad had kidney failure. It was from high blood pressure due to a blown aortic valve after having rheumatic fever. What I know from his experiences is that you never gloss over any kidney issue. How's your BP?

Do you know what the GFR has been in the past? Can you track a trend, and see if it was normal before the drugs?

Is it possible that you might have lupus?

It makes me nuts when doctors gloss over important information! Go see a GOOD nephrologist and figure this out.

Don't worry too much, but do take action (which I know you will). Take care of yourself!


Annie
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