Hello everyone, gee wiz I should have saved my intro for this room. Maybe I will just paste it since it’s more relevant here.

Hi, my name is Dan, an avid outdoorsman construction worker type, who just returned home from icu being just diagnosed with Myasthenia Gravis and after 9 Plasmapheresis treatments to grasp the ability to breathe and swallow again. lol that seemed long winded.

Anyways, so far I am good spirited and feeling a little better although the diplopia (double vision) causes some reading/writing issues, there are benefits at times.

Anyways, the symptoms started abruptly about a year ago with double vision and have intensified to weakness fatigue, slurred /loss of speech, breathing issues, inability to swallow, choking, vomiting etc….

Now I am trying to learn what exactly I have, since my doc was not very coherent and transferred me to another I can’t afford. Had 7 in the hospital just found out no ins coverage. Ouch…

All I know is it’s “the rare type Myasthenia Gravis non musk”….. says there is not much paperwork on it, a bunch of trial and error stuff. Who knows? Been a week since my last plasma pher treatment and it’s a mixed bag. Doc says could need more tomorrow or next year?

Anyways, any and all help in understanding about it is appreciated.

I should note, I am a very strong Christian and either way it works out I am in good hands.

Second note, I had to add Plasmapheresis to my spell check. Must be rare. lol

Well it’s hard to get me down, and I am often a good leaning post so if I can be supportive or you need an ear. Bring it on. I do pray often and if you feel you need prayer ask away.
Dan