[Lin_Z]

Hello all,

So I tried IVIG back in December. Day One I was in the chair for 4.5 hrs. Day Two the nurse said because I handled the first day so well we could do it in 2.5 hrs. That night I was in the ER with horrible head pain and nausea. I honestly have never felt a pain like that in my entire life. My neuro cancelled the rest of the treatments.

Fast forward to April when I finally have the courage to try again.

I get to the infusion suite and the nurse asks me if I care of we do it in 4.5 or 2.5 hrs. I ask her if it makes a difference, she says no. The next day I'm back in the ER with what drs tell me is probably aseptic men. Treatments cancelled again.

I had a follow up with my neuro last week and brought up that the infusion was done in 2.5, and if we slowed it down perhaps I'd do better. He said it makes no difference, I'll always have that reaction.

I'm going back tomorrow because I've been so upset and stressed out about my lack of options that my symptoms are flaring up pretty bad.

Should I look for a second opinion or do you guys think this is normal??