very true!! There was definitely a lack of urgency with my case in the beginning.. it wasn't until it affected my respiratory muscles pretty badly that the sense of urgency on their part happened.. not fun!

Yes, I'm WAY weaker than I was before this all started over 3 years ago, but WAY stronger than I was 2.75 years ago! I used to work out, run, was toned.. haha now... I have to save my muscle strength for the essentials of work, kids and everyday "chores"..not sure I"ll ever get back to being able to work out again.. I can hope!

All we can do is do what we can do.

This Catch-22 disease is a pain. I try to exercise when I can and be as physical as I can, but then MG kicks you a day or two later as well as right afterwards. It's so hard to tell when that will happen. I don't even keep a "schedule."

Atrophy is not good. If you can, be evaluated by a physical therapist to determine how bad it is and what could be done about it.

JJ, doctors should at least be able to communicate ideas to patients. I think they spend so many years sucking in information that they aren't taught how to regurgitate it—in a nice way.

Annie