Hi there, I came across this new piece of info (for me anyway): myasterix.
www.myasterix.eu

I really hope this is something!!

Used the search button, but Myasterix wasn't found on this forum. Are any of you familiar with it? It seems kinda interesting.

Maybe we all need to take a trip to Europe.

That's an expansion of the work by J. Edwin Blalock.

http://www.curavac.com/company/about/

Sure, there's some "hope" in all of this, but I'm still skeptical.

Some Gulf War veterans got squalene antibodies, and a nasty new neurological "disease" that goes unnamed, from certain lots of an anthrax vaccine given to them. Vaccines alone can be fraught with problems for those with autoimmune diseases. Squalene is one of the adjuvants in vaccines and supercharges the immune system to create the antibodies to, for example, the flu.

In some people, that can cause an autoimmune disease to present.

This sounds more like an attempt to make one more drug than to help to cure anything. I'm more hopeful of the research being done by other scientists, such as Angela Vincent.

Annie

Thanks, didn't know that. I got all excited when I read it.
Can you tell me more about the research Angela Vincent is doing?

Annie,
I tried writing a post but was not successful. Any suggestions in getting financial assistance with the co-pays for IVIG? I really need to have another round but after the first one I'm concerned about paying the copayment.
Any input would be great.
Thanks Debbie Sonomagirl

You might be right . . .

The European Commission (EC) has granted orphan drug designation (ODD) to Alexion Pharmaceuticals' Soliris (eculizumab), a first-in-class terminal complement inhibitor, to treat patients with Myasthenia Gravis (MG).

http://regulatoryaffairs.pharmaceuti...040814-4334013

http://www.marketwatch.com/story/eur...-mg-2014-08-01

-Mark-

No need to move - the FDA granted orphan drug status to eculizumab for MG in the US in June:

http://www.marketwatch.com/story/fda...-mg-2014-06-17

And, there is a clinical trial underway to test the drug in MG. Most of the trial sites that have opened so far are in the US, with one in Canada and two in Japan:

http://www.clinicaltrials.gov/ct2/sh...thenia&rank=21

If I had the opportunity, I would be more than willing to try the Myasterix. I am really sick of being sick.

I wonder how long it will take for the testing phase of the new treatments?

-Mark-