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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Grand Magnate
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Mark, There's no way to tell when you should book that room.
I urge you to see an endocrinologist soon. The issue of an adrenal crash is very real for you. They might need to monitor you as much (or more) as your neuro does. And an enlarged adrenal is not normal. Is it even working? If not, then how is the kidney that it's sitting on top of? Lots of questions you need to be asking! If I were to guess, I'd say that things start to become dicey around the 25 mg. point. You might need to have a longer taper, and a smaller drop in dose (i.e., 2 mg. at a time). Only time will tell what your body can handle. I don't think anyone can give you an answer on this one; except your body, that is. Annie |
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