FAQ/Help |
Calendar |
Search |
Today's Posts |
|
Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
Reply |
|
Thread Tools | Display Modes |
09-11-2014, 09:51 PM | #1 | ||
|
|||
Junior Member
|
Hi,
I had my second IVIG 4 weeks ago. It took almost 10 days before it kicked in. The last 2 days I have had burst of ache and pain in my legs to take me down on my knees. Today my Neuro increased my Mestonin. From 60 to 90 3 x a day. Were doing that to see if it works instead of another IVIG treatment at this time. Has anyone else had theses issues. Sometimes my legs feel sensitive to even touch. When this raging pain hits me I cannot stand. Please help! Sonomagirl. debbie |
||
Reply With Quote |
09-11-2014, 10:49 PM | #2 | ||
|
|||
Newly Joined
|
I have similar pain from the knee down some days..I can still stand but it is a aching pan in my joints... I don't know the cause of it thou
|
||
Reply With Quote |
"Thanks for this!" says: |
10-02-2014, 06:23 PM | #3 | ||
|
|||
Junior Member
|
I have leg ache but mine is from my knees and thighs. Let us know if the mestinon increase relieves some of it. I was on 180mg but was getting sick so I dropped down to 135mg still get the strength back but have the leg aches
|
||
Reply With Quote |
10-04-2014, 05:20 PM | #4 | ||
|
|||
Grand Magnate
|
Have you been checked for venous insufficiency, dehydration, a clot, infection, or had any other evaluation of your leg pain? If not, you should!
Annie |
||
Reply With Quote |
"Thanks for this!" says: | cait24 (10-12-2014) |
10-12-2014, 06:10 PM | #5 | ||
|
|||
Junior Member
|
After further testing as you suggested my Mestonin has been increased. That has really helped. I've also been able to go 8 weeks now without IVIG treatment. I believe that will be in the near future. Thanks again for direction.
|
||
Reply With Quote |
10-12-2014, 07:47 PM | #6 | |||
|
||||
Member
|
I used to get a lot of leg pain. My doctor changed my antidepressant from effexor to cymbalta because cymbalta also helps reduce pain. I think it does help. My leg pain has been reduced
kathie |
|||
Reply With Quote |
"Thanks for this!" says: | AnnieB3 (10-13-2014), Sonomagirl (10-13-2014) |
10-13-2014, 11:17 AM | #7 | ||
|
|||
Grand Magnate
|
I'm glad you are better.
Annie |
||
Reply With Quote |
"Thanks for this!" says: | Sonomagirl (10-13-2014) |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
crushing pain in my legs... anyone else? | Reflex Sympathetic Dystrophy (RSD and CRPS) | |||
New neuro and legs being a pain? | Multiple Sclerosis | |||
Pain in legs, side, etc... | General Health Conditions & Rare Disorders | |||
Pain in legs and heel.. | Spinal Disorders & Back Pain | |||
Pain in backside and legs, please help! | General Health Conditions & Rare Disorders |