Stop the Red Bull!

Too much B6 is toxic. Try to find a multivitamin with a low dose of it.

Annie

I have stopped the red bull and b complex. I also switched to methyl b12. I saw a rheumy yesterday who said he thinks it is probably post viral as well as but is having a bunch of blood tests run just in case. I guess we will see if anything comes up. I am feeling a lot more stiff this week, especially in my hands.

Just for an update, I had a second EMG/NCV today. My nerve conduction study showed something like a 6 or 7% decline in output one my foot after resistance was applied for one minute. The Neurologist said this was "myasthenic". Are there any other conditions that would have this same issue or am I pretty much looking at MG? The EMG part was normal in all four limbs, and of course, all the fasciculations go away as soon as I get a needle stuck in me.

Also, those with MG, do you find one limb being hit harder than another?

In my case, weakness is very asymmetrical. My right eye is worse than my left. My left leg is worse than my right.

Thanks. My right arm and both legs are currently being heavily hit.

ask for a western blot
(Western blot
This is an immunoassay test method that detects specific proteins in blood or tissue. It combines an electrophoresis step with a step that transfers (blots) the separated proteins onto a membrane. Western blot is often used as a follow-up test to confirm the presence of an antibody and to help diagnose a condition. Examples of its use include confirmatory HIV and Lyme disease testing.)


I had to pay $475 for it but , insurance would not cover it all... But it is the de facto for lyme...

then get to a neurologist and get tested fot MG and LEMS

ask for blood work and a EMG

get your vitamin d tested also
its a simple blood test vit d25 test
get your levels as close to 80 as you can
I take 6000 IU a day levels are re checked every 3 months im at a 68.7 right now
do a quick Google on vitamin d3 and what it can help, and prevent.. it is amazing stuff

I've already done the western blot for lyme. It was negative. My bloodwork showed low vitamin D so I'm currently taking 5000ius a day.

Awesome!!!

Ditto on the asymmetry.

Yeah, it sounds like MG. When do you hear back for sure?

Annie

They're doing the nerve conduction test on my face I think Wednesday. No one has mentioned a SFEMG yet. They told me no signs of mnd but that my foot was myasthenic during the test. My bloodwork script says "dx: Myasthenia Gravis" on it. I'm not sure how much more testing needs to be done to confirm. From my understanding, there is really no other diseases that would cause this finding, correct?