thanks Kitt tired is not the word for it. I had ivig treatments last week helped a bit.Still having issues mg is like a day by day hour by hour thing. Im just rolling with it or ill sit and cry for hours lol hugs sally

Hi, Spedersen. Welcome!

I hope you'll do a new post so that any questions don't get lost in this one!

I'm sorry it's been such a rude awakening and that MG has been so severe right away. Keep your neuro informed of any changes. If you get worse, don't hesitate to dial 911.

Try not to sit and cry! It's so bad for MG. I know it's very hard to have it, but there are so many ways in which you can adjust your life/lifestyle in order to cope. Truly there are!

And since you're on Pred, you might be having an emotional reaction to that! In some people (like me) it affects mood. I get steroid psychosis, which is not pleasant. Avoid salt, if you can. That will reduce any fluid retention. Do they have you on a taper? How much are you taking?

Again, I hope you'll do a new post so that we can all help you out!

Annie