I just found out about 2weeks ago that I have Myasthenia gravis. A real shocker to me and the neurologist. I really wasnt having any of the symptoms the only thing that made me realize that there was something wrong was I was having problems smiling. So when the lab work she ordered came back showing I have MG was very shocking. As of now she has me on 10mg of prednisone i've been reading and some people have also told me not to do prednisone because its so bad??? she also has me on 60mg of mestinon i've heard good things about that. Im just a little nervous and confused about everything and very overwhelmed. Im very scared to see how bad this could get. Will it get worst? if anyone has any info please let me know!!

welcome to NeuroTalk Miss~A~ though I am sorry to hear you are dealing with all this

I dont have MG and so I will defer any info on that to the members here who do, but I just wanted to encourage you to take it a day at a time as you readjust to your illness. Things can seem very overwhelming at first after a diagnosis, but as you begin to gain knowledge and correct treatment, so hopefully things will not seem so very desperate for you

you will find a lot of caring support here.

Cheri

Hi Miss A -
I live in Minneapolis too so if you would like to talk directly I can give you my number...

Meanwhile my advice to you is to take it slow. It is a lot to absorb all at once. The magic of Myasthenia is that is different for everyone. It doesn't always get worse - mine did progress but has now improved some. There are a lot of different treatment options and it takes time for you and your doctor to sort out what will be best for you.

There are several websites dedicated to educating people about Myasthenia Gravis. You have probably already done a Google search. Don't believe everything you read because it is not the same for everyone! I read things that terrified me -I was more than a little scared .

I am glad you found this site . If you want to talk let me know and I will send you a private message with my number.
Gabrielle

Welcome to NT, Miss~A~!. I've had MG since the mid 70's. Back then it was considered to be a potentially fatal disease. I was turned down for insurance more than once. However, new treatments allow most myasthenics to live a fairly normal life. Of course, you have to learn that normal for you is now different. You may not progress much beyond what you now have. Or you may progress. Like Gabe said, we're all different. If you find yours is progressing, learn your new limitations. Stay active, but don't over-do it. Watch out for the triggers: getting too hot, getting too cold. Check out the info in the stickies at the top of the page. There are some medications we have to be careful of. They can exacerbate MG. You may find it helpful to print off a list of them and take it to your GP. And do educate yourself.
Hugs,

Hi Miss A- I just joined this site today. I am in the same boat as you are.
Scared and confused. Hopefully we have landed in a place where we can get help from other folks with MG.

Okay, I don't think I seen you were on Prednisone on the other post. 10mg isn't bad. And as much as I personally hate being on Prednisone, it has helped me so much.

Other than the smiling problem, do you get tired easy? Or get double vision, or arms,legs, get a tired feeling in them? I use to choke on food a lot. It was as though I needed to remind my body how to swallow. It was awful. It wasn't until after my diagnsoses that I experienced double vision. Do you feel weak from heat..such as being out in the sun, or on hot days?

It can be so scary i know, and I wish I could be there to help you through all this. Please ask as many questions as you want.

Much Love
Love Lizzie