Junior Member
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Join Date: Dec 2014
Location: Half Moon Bay, CA
Posts: 8
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Junior Member
Join Date: Dec 2014
Location: Half Moon Bay, CA
Posts: 8
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Newly diagnosed with questions
I was finally diagnosed end of May after every blood test and tortured muscle test came back negative or normal. After original neuro doctor sent me home indicating it was mental. I got a second opinion with the Chief of Neurology who knew right away. Did my first IViG treatment and Prednisone in June and felt great for about a month. The doctor tapered me off Prednisone, completed in October. Started Imurane and Mestinon at the same time in June. Mestinon was not working so stopped. My symptoms don't seem as extreme as I see others but are bothersome to me. I've had swallowing difficulties for a couple years and has never improved, walking up and down our stairs continues to be difficult. My breathing is a challenge when using my arms and walking, I.e. Folding laundry and carrying upstairs. Just 2 years ago we would walk 12 miles, now I'm lucky to walk 1. MG is a big mental challenge for me and has been extremely frustrating. I feel great in the morning then crash thru the day. How do you all deal with this?? My mind and body do not want to compromise with each other. I'm slowly learning to select my activities of impertinence.
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