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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Junior Member
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Hello again.
So yesterday I met with the Myasthenia Gravis specialist and he does think that I have MG. He did an exam, which showed mild to moderate muscle weakness around my face and neck. He also found a tremor when he strength tested my arms and legs. No weakness there though. He ordered blood work for all the possibly antibodies and thinks the MUSK one is most likely. And he gave me Mestinon to try. He said it was partly diagnostic-- if it works we can be fairly certain it's MG. Today was my first day on it. I don't know if it works or if I just want it to work. But I did notice a difference, albeit short-lived. He warned me about side effects but I didn't notice any. I just wanted to know if it seems likely that it was really helping or not since it only seemed to last a couple of hours before starting to wear off. I also wondered if anyone knew anything about the tremor. He said it wasn't how MG usually presents but it is odd. Does anyone have anything similar? Basically when he pulled against the muscles they started to shake. One more question that I imagine I'll have to ask when I go back-- I'm a power lifter. Heavy barbell weight lifting. I assume power lifting is out. Does anyone know if weight lifting is completely off limits or if I might be able to stick to lighter weight? Thanks. |
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"Thanks for this!" says: | AnnieB3 (01-28-2015) |
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