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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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01-06-2015, 06:21 PM | #1 | ||
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Junior Member
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I am a 73 year old male with MG for 7 1/2 years. I am now on 15 mg of
prednisone daily, and 30 mg of mestinon every 2 hours. I have to get up every 3 hours during the night to take a mestinon tab. The doctor wants me to start start taking the 180 mg of mestinon timespan. Has anyone had any experience with timespan good or bad? |
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01-06-2015, 08:43 PM | #2 | |||
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Member
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Your age ect fits mine. My case may not as bad as yours. I take 60mg of Mestinon every 4 hrs. For first couple of years I took the 180 time span then I told them the 180 wasn't doing anything. They did a couple of over night tests on my oxygen levels and decided to stop it. I'm doing ok and reducing my prednisone. I'm also on Cellcept.
Mike |
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"Thanks for this!" says: | AnnieB3 (01-08-2015) |
01-06-2015, 10:09 PM | #3 | |||
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Member
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I take the 180 at bedtime and about once a year, I forget to take it. I always know the next morning that something is wrong - I am so much weaker overall and don't feel better until my 60 mg kicks in. I usually look in my pill container (I fill them up each week) and the pill is stuck in the bottom so I know I didn't take it. Have never had any problems with it and as I said, really know when I don't take it.
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"Thanks for this!" says: | AnnieB3 (01-08-2015) |
01-07-2015, 10:43 AM | #4 | ||
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Junior Member
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Quote:
I wish you luck! Debbie |
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"Thanks for this!" says: | AnnieB3 (01-08-2015) |
01-08-2015, 01:03 AM | #5 | ||
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Junior Member
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I was on Timespan (until I couldn't afford it anymore). It made a great difference for me overnight, especially improving how I felt first thing in the morning. Between improved quality of sleep from not having to actually get up every few hours, to the slow release dose, I felt so much better in the morning when I was on it.
The only issues I had in the beginning (which I had with regular Mestinon too) is that it made me hungry, so with the Timespan for about the first two or three weeks I would wake up every night between 2 and 3 am and have to have a little snack. Just started keeping a cheese stick or a couple of graham crackers next to the bed. |
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"Thanks for this!" says: | AnnieB3 (01-08-2015) |
01-08-2015, 01:59 AM | #6 | ||
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Junior Member
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It was the first medication given to me for MG 16 years ago. I had no problems with it. Just make sure the pharmacy includes a silica packet with the prescription to help keep them dry.
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"Thanks for this!" says: | AnnieB3 (01-08-2015) |
01-08-2015, 12:48 PM | #7 | ||
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Grand Magnate
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It wasn't sufficient for me while sleeping. I hope it works for you!
Annie |
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01-09-2015, 10:31 AM | #8 | ||
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Junior Member
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