[mrjr2345]

I was diagnosed with generalized MG in 2004. Began receiving weekly IVIG treatments, other therapies tried and did not work.
Recently spent 16 days in hospital because of acute renal failure (separate medical issue). While there had an EMG test that said I no longer have MG. Does anybody know of similar situation?
While I would be happy to be free of MG symptoms, something is still wrong with my immune system because I have 4 other auto-immune diseases.

[AnnieB3]

Hi. Are you being treated for any of the other AIs? Are you on steroids or any other immunosuppressants? If so, that would make the signs/tests of MG disappear, but that wouldn't mean that you no longer have it!

I'm sorry you had acute renal failure. Do you have lupus?

What else can we help with? Do you have a good neurologist?

Annie

[mrjr2345]

I am being treated for RA and Diabetes. I have Lupus and Sjogrens also, but I don't receive any therapy for either. Since I am in remission, they have taken me off all immunosuppressants. Right now I have been told that I am still sick with an immune system defect, but nobody knows what it is. The current plan is to see a clinical immunologist in MN, not with Mayo, who worked with me from 2004-2009. I have 2 neurologists here in AR that I am trying to decide which one to work with.

It has been almost 30 days since my last IVIG treatment and I have been symptom free. While this makes me very happy, we keep waiting for the other shoe to drop since I have dealt with this disease for the last 11 years. The best advice I have gotten so far is "nobody knows what causes MG and nobody knows what causes it to go into remission." I would like to speak with others in remission.

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