Interesting!! thanks for the info MrsD!! I have a lot of those symptoms for sure, but i'm not on any of those medications.. so meds wouldn't be a cause.. I will have to look into some of the natural causes of it though!

My lips never turn blue at all.. it's only when I use my tongue ( like when I push it against the inside of my cheek.. it will start to feel fatigued and then I look and it's purple/blue). I rest it and color returns (though it is a strange spotchy blue when it is blue)... I do get raynauds and other fun autoimmune issues.. and my tongue weakness does get a lot worse with cold- when I eat ice cream I can barely move my tongue, slurred speech etc.. it warms up and then it's normal (ish) again..