[Meech]

I went to see an optometrist today and he could find no reason for my double vision saying he believes it to be neurological and is referring me to a Neuro-Ophthalmologist. One of the things he mentioned was myasthenia gravis, so that is the second doctor in just over a week now. Still waiting on the blood work and follow up appointment. Is the antibody test one of those blood test that takes a while for results? What happens at a Neuro-Ophthalmology appointment?
Thanks, Meech

[pingpongman]

The neuro-opt was the one who dx'ed me. My blood work had came back neg but he said he didn't care that I had MG sure enough 6 months later it was positive. His eye exam was very extensive. I would say you are getting some
GREAT advice. The blood work should go to Mayo and takes about 6 weeks.
Good Luck
Mike

[Meech]

I'm in Canada so I'm not sure where the blood test was to be sent, luckily the doctor sent me to the hospital lab though as she told me it would cost me $180 at an outside lab. Thanks for the reply.

[AnnieB3]

Meech, N-Os do a variety of visual tests. They can tell if your eyes are not focusing the same by asking you, for example, if the two horizontal lines that you see are at the same level or if one is higher than the other.

They can check to see if they can fatigue your eyelids and then redo those tests to see if they're worse.

It's a very simple exam, but really tiring for the facial muscles!

The AChR antibody test doesn't take a super long time—anywhere from one day to several. You could always call and ask if the results are in.

Waiting is the hardest part, isn't it? I hope you get answers soon!

Annie

[finuch]

Meech • I saw my opthamologist last year for double vision ... no diagnosis, only a suggestion that it might be MG. He suggested that I see a neuro-opthamologist which I did - twice - and who ran a series of tests but could not come up with an MG diagnosis, altho she suspected it. She referred me to a neuromuscular doctor whom I saw and who ran some tests and diagnosed the Myasthenia syndrome. One of the tests done was a MuSK antibody test which took eight weeks for the report to reach my doctor. I’m in Arizona and the blood work was sent to a lab in Massachusetts.

To me, the whole project felt a bit like running in circles but eventually answers were found. I agree with pingpongman that you are getting great advice, and with AnnieB3, that ‘waiting is the hardest part’. Have faith, Meech, you’ll get there.

[Meech]

Thank you all, I know I need to try and be patient but you are right, the waiting is hard and a little scary.
Meech