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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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03-13-2015, 08:31 PM | #1 | ||
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Junior Member
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Hi, Has anyone heard of a person being diagnosed with MG when ultimately, after some years it turned out to be LYME?.
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03-15-2015, 06:59 PM | #2 | ||
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Grand Magnate
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Hi, michaelunty. No, I haven't heard of that, but it doesn't mean that it doesn't happen.
I have a friend who has Lyme and then got MG years later. Have you been tested for Lyme? Do you have MG antibodies? Let us know if you need any more help! Annie |
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03-16-2015, 10:24 AM | #3 | ||
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Junior Member
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I also know someone that was treated for Lyme for years despite having negative test results. She was diagnosed with MG after a doctor noticed her drooping eyelids and sent her to a neurologist where she tested positive for MG. I know another person who insists she has Lyme despite negative test results and has all the symptoms of MG but refuses to be tested for it. The medications she takes for Lyme are not effective and she is suffering terribly.
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"Thanks for this!" says: | AnnieB3 (03-20-2015) |
03-18-2015, 08:41 AM | #4 | ||
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Senior Member
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Quote:
So if a person has a diagnosis of MG, and then is discovered to have Lyme disease, I would be careful not to assume it was Lyme and only Lyme all along. How was the diagnosis of MG made? Lyme doesn't cause the antibodies that a blood test for MG looks for. Lyme doesn't causes a positive SFEMG. I've never heard of the symptoms of Lyme responding to Mestinon or Tensilon. Also, I know that Lyme symptoms can vary greatly (and so can MG symptoms), but there are MG symptoms that don't appear on the Lyme list, and Lyme symptoms that don't appear on the MG list. Abby |
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"Thanks for this!" says: | AnnieB3 (03-20-2015), southblues (04-14-2015) |
04-12-2015, 08:53 PM | #5 | ||
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Junior Member
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Yes, I do have MG.
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04-22-2015, 06:24 PM | #6 | ||
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Junior Member
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Quote:
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