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juliejayne 06-26-2015 01:59 AM

Yes I have read all these reports, and it seems likely that they are correct.

But having a scientific bent, I thought that this would be a perfect opportunity to prove this once and for all, albeit with a single test subject...me.

The Doctors here say that 1000 per day will be enough in a couple of weeks. So I am following their advice. But I will get tested on Monday... 4 weeks... and we will see. I expect that the level will not have changed much, I certainly don't feel any better.

I will let you know.

juliejayne 07-09-2015 02:07 AM

Answer is, 1000 per day for 4 weeks increased the Vit D level by 1nmol/l.
The GP suggested himself that that could be a variance between testing labs.
So zero improvement.

He is now suggesting that I have a much much higher dose for a couple of weeks.

juliejayne 07-11-2015 03:15 AM

So from one extreme to the other... now on 100,000 once a week for 2 weeks. Plus of course the existing 1000 per day.

And of course that is going to mean yet another blood test in 2 weeks.

Auntie Audrey 07-11-2015 03:01 PM

Hi juliejayne, hope your large increase in dosage helps!

Here is a link to a site that has some useful information about vitamin D:

http://vitamind3-cholecalciferol.com/

Here is another link from that site, titled “How to Calculate your Personal Vitamin D Dosage,” with suggestions for vitamin D dosage based on body mass and sunlight exposure:

http://vitamind3-cholecalciferol.com/vitamin-d-dosage/

juliejayne 07-12-2015 04:15 AM

Thanks for the links Audrey. There is a lot of information suggesting that Vit D is great for heaps of things. But what I can find very little of is details of what Vit D deficiency will actual cause by way of symptoms. It is usually that it will worsen other things.

So whilst I believe that it is important, I am disappointed that there seems to be no way to identify which symptoms, could be cause or improved by it.

This enables doctors to blame anything that they can't explain on Vit D deficiency, and if you don't get better, then you must be doing it wrong.

davew41 07-12-2015 07:03 PM

Quote:

Originally Posted by juliejayne (Post 1150660)
Well this is the level of "expertise" here in the Netherlands.

710 B12 is considered High (I am still taking B12 since you can't overdose)

Vit D... The GP informed me that 1000 IUs for a couple of weeks would be enough to bring my Vit D level back to normal...

So I managed to twist his arm to get another blood test for Vit D. 5 weeks after starting the supplements, because the MG Neuro will be calling me to see if Vit D has "cured" all my MG symptoms. I go for the blood test on Monday, and hope to have the results a week later.... we shall see.

wrong!!!!
vit d25 test should be done every 3 months
if there is a cancer risk your levels should be as close to 100 as you can get
my levels are 78.6 as of now and i take 6000iu a day NOT 600iu 6000iu
id find a new doctor
information is wrong

juliejayne 07-13-2015 02:09 AM

Dave, I know. But this is the view of the entire Dutch medical establishment.

However the fact that 1000iu per day over a month, made zero difference has pushed them to give me 100,000iu once a week for 2 weeks. It will be interesting to see what difference this makes.

After the medical profession has stopped playing "guess the right level" I will be taking your advice and taking 6000iu per day.

Auntie Audrey 07-15-2015 11:04 AM

Hi juliejayne, in my case my PCP thinks a vitamin D deficiency is contributing to muscle weakness in my legs.

Here are a few links about symptoms of D deficiency:

http://www.drfranklipman.com/symptom...-d-deficiency/

An excerpt from the above link listing common symptoms:

Fatigue
General muscle pain and weakness
Muscle cramps
Joint pain
Chronic pain
Weight gain
High blood pressure
Restless sleep
Poor concentration
Headaches
Bladder problems
Constipation or diarrhea


http://www.livestrong.com/article/29...-d-deficiency/

http://www.womenshealthmag.com/nutri...n-d-deficiency


Hope this helps!

pingpongman 07-15-2015 09:01 PM

Statins cause bad leg problems. My Neuro-muscular Dr took me off them 3 years ago.
Mike

juliejayne 07-16-2015 02:11 AM

That is my problem when trying to find out what Vit D deficiency causes...
Quote:

An excerpt from the above link listing common symptoms:

Fatigue
General muscle pain and weakness
Muscle cramps
Joint pain
Chronic pain
Weight gain
High blood pressure
Restless sleep
Poor concentration
Headaches
Bladder problems
Constipation or diarrhea
These are all so general, that anyone can go look, and say, yes to several... for me;
Fatigue
General muscle weakness
Weight gain
Poor concentration

But the others NO..

And then there is Double vision, a major problem for me and not listed.


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