hello everyone, I haven't been here in quite a while.
life has been keeping me busy and Im not much of a computer type of person, no facebook or twitter for me, my wife and children stay on top of all of that.

briefly, I retired 5 years ago a little after being diagnosed.

I started IVIG a year or so after that, tried stopping it once for 8 months, started it up again.
Im on cellcept, been feeling ok. Eyes are ok, etc..
If I overdo it, well, Im 61 and fat, with a bad knee, so if I overdo it, Im repaid in more ways than one.

Ive always been uncomfortable with my ivig infusion, every 6 weeks.
I just don't like it and the neuro told me he feels I should have stopped it a while ago once I was on the cellcept for over a year and half, but it was my choice, and I chose to stay on it as I still felt great after it.
The good feelings seemed to fade away, not sure if it was helping me at all, so last treatment I spoke to doc, he agreed, its time to stop.

my usual time was every 6 weeks.


Its been around 10 weeks, and I don't know if its my old fat body, but I cant seem to be motivated at all lately.
I laid in bed yesterday morning after breakfast until 11:30 am, something Ive never, ever done.
The day before, by 1pm in the afternoon after a little time in the garage(yes its hot, but Ive tolerated upper 70s ok), I was so beat I was in bed until 4:40 when my wife got home from work and said, hey, whats up with you lately, you always seem so worn out.
Today, while only 9:15, Im beat, and I had a good nights sleep.

does anyone with experience with Ivig think me stopping it is actually contributing to me feeling so sluggish?
Its not like me, trust me, even with myasthenia, Ive always been a bundle of energy, just a bit more tamed the past 4 or 5 years.
Maybe my weight, diabetes(but diabetes never made me feel like this), not sure, but its strange the way Im due for my infusion and I feel like just laying down.

hope everyone is enjoying the summer and feeling strong.