I do feel "lucky" in a way that my original neuro doc that I see for other issues saw a problem and sent me for testing, and that the new neuro doc during this testing knew about MG and asked the right questions because at that point I wasn't connecting my double vision with my weakness. I know people go years trying to get answers.

I feel this new doc is downplaying the possible problems that could arise from MG. I was given no info on it really from her on what to look out for. While I don't want it to be overdramatized, I don't want it sugar coated either, if that makes sense?

I do already see a pulmonologist for my cystic fibrosis, luckily my lungs are in pretty good shape and I have more digestive issues. The neuro doc is already consulting with him to see if the immunosuppressive drugs would be appropriate with my CF. (she also gave me no info on these drugs except to agree prednisone wouldn't be appropriate) I think she may be the MG expert in my area, but I will check next till I go to my CF clinic as it would be easier if there was someone at the same hospital I could see. Her office is difficult for me to get to.
Thanks
Meech