Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 08-11-2015, 05:52 PM #1
kay.too30 kay.too30 is offline
New Member
 
Join Date: Aug 2015
Posts: 3
8 yr Member
kay.too30 kay.too30 is offline
New Member
 
Join Date: Aug 2015
Posts: 3
8 yr Member
Angry What do my test results mean?

In May of this year, my ophthalmologist said he was 80% sure I had MG by doing a cold compress test to my drooping eye lid. He ran labs and the result were:
negative on the binding 39% on the acetylcholine Blocking. I took these results to my neurologist and he dismissed these results entirely stating I did not have MG and ran his own tests at the mayo clinic; with the results being: 0.00 on the binding; 7% on the ACh receptor modulating AB; and negative on the striational AB.

However, he still put me on 60 mg of Pyridostgmine 3x's a day. This has significantly helped my drooping eye lid. The neurologist has refused to order any more tests for MG, however, he has ordered expensive testing, including an MRI for MD, testing for lupus,, AMA multiplex (I don't know what this is), a creatinime (I don't know what this is either), testing for rheumatoid arthritis, vitamin B12 deficiency, and Free light chain ratio (don't know what this is).

I've requested a second opinion and am refusing to have all this testing done until I have a second opinion.

What advice do you all have for me?
kay.too30 is offline   Reply With QuoteReply With Quote
 

Tags
advice needed, neurologist, pyridostigmine, testing


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Test results chimchimsdad Gluten Sensitivity / Celiac Disease 2 06-17-2015 06:18 AM
help with ncv test results podpeople Peripheral Neuropathy 3 07-11-2013 02:36 PM
Lab Test Results nicolep1016 Gluten Sensitivity / Celiac Disease 1 12-11-2010 05:59 PM
Test results in - results given by phone lynxgal Peripheral Neuropathy 3 07-10-2008 05:49 PM
Got my b12 test results.... aloneouthere Peripheral Neuropathy 4 10-19-2007 03:37 PM


All times are GMT -5. The time now is 10:57 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.