Hi everyone

This is my first post, and undiagnosed, I'll tell you my history

48 yr old female, 3 years ago struck down suddenly, from healthy woman enjoying a packed social life and full time employment to a frail female not functioning and weak. Bloods revealed slight B12D (179 (211-911)) and peri menopause. After much arguing gp agreed to start me on B12 tablets but stopped them when my level rose to 219, so I bought my own, I have been on hrt since age 32 when my ovaries failed after my hysterectomy

Things have been much the same between 2012 and 2014, I holidayed abroad in sept 2014 and as much as i enjoyed it, it exhausted me, the heat, walking, asthma took a battering.

Over Christmas 2014 I developed diplopia and as embarrassed as I am to admit, I thought nothing of it. Feb/March I developed blurred vision intermittently throughout the day which interfered with my job using PC. I thought (as a contact lens wearer) I needed a new prescription but optician said my eyes haven't changed, so I told them about the diplopia. They referred me to emergency eye clinic who diagnosed 6th nerve palsy. They tested diabetes and did pin hole test and said its age related and sent me to opticians to get permanent prisms. Optician refused the diagnosis and said see GP for tests(he wrote then down to give GP) GP asked my symptoms and as I started reeling them off she asked why I hadn't Persued these, I had on many occasions and everything is always blamed on menopause, she referred me to neurologist who I saw 2days ago, he did various physical exams and said he suspects ocular MG and has given me mestinon to try, he sent me for the antibody test and I'm waiting on an MRI. I have noticed I get 'heavy eyed' but I'm always tired and when the crashing fatigue hits they go even lower but never obstructing vision. The lid of the eye with diplopia doesn't shut properly when blinking sometimes and I wake up with gritty eye feeling. Generally muscles are weak, legs go wobbly downstairs and sometimes walking and simple chores exhaust me and my muscles. Day 2 of mestinon and the only thing I have noticed is the first night my eyes seemed more open, more alert, but nothing since I don't think. I haven't choked on food, but have quite a few times on my swallowing saliva and liquids, but it feels like my throat has moved nearer my jaw and something not right on left side of neck when it happens. When talking for a while my voice sounds quivery as if I'm nervous, and when I put pressure on my arms (like pressing the hrt patch onto my thigh) my arm will tremble

I'm doubting I have MG (or ocular) as I don't seem to be benefitting with mestinon and don't seem to have the classic symptoms, although he said he purposely exhausted my eye muscles Friday to see their reaction which led him to his potential diagnosis, he said its 50-50 with the antibodies and won't go purely by that

Does this sound like something else? Terrible tinnitus abc when I stand it's gets awful with a pressure building in my neck. Thyroid is normal apparently

Sorry it's so long winded

Anne