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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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10-08-2015, 03:14 PM | #1 | ||
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Hi all,
I have been adding more dosage of Mestinon for some time now. Started at 3 x 60 per day. Now up to 6 x 60. I went to the Nuro last week, and they suggested I try the 180 Timespan, and drop 1 of the evening 60 mg. I have and seems to be better. Have any of you used this Timespan, and if so how were you results. Thanks FREDH |
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10-08-2015, 08:04 PM | #2 | ||
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Good luck! |
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"Thanks for this!" says: | FREDH (11-17-2015) |
10-08-2015, 09:36 PM | #3 | ||
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Quote:
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"Thanks for this!" says: | FREDH (10-09-2015), juliejayne (10-09-2015) |
10-09-2015, 08:00 AM | #4 | ||
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Later -FREDH |
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10-10-2015, 10:37 AM | #5 | ||
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3 x 60 + 2 x 180 is 540 mg. I am on 6 x 90 mg = 540 mg, and that is not enough, probably going to have to increase to 6 x 120 = 720 mg total. In actual fact the total per day is not really so important, because of the short half life of this medicine. What is more important is to have the needed level at regular intervals. Every 4 hours is the most common, but that can be as often as every 3 hours, or as long as every 6 hours. |
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"Thanks for this!" says: | FREDH (10-12-2015) |
10-10-2015, 10:42 AM | #6 | ||
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Oh, and Timespan is designed to give you the same effect that 60 mg every 4 hours would give you. The idea being that you take it late at night and it covers you until you wake the next morning, so from 12 until 9.
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"Thanks for this!" says: | FREDH (10-12-2015) |
12-28-2015, 09:11 AM | #7 | ||
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That said, I seemed to be fairly weird with the instant Mestinon. It would take over an hour for me to start feeling anything, get only an hour or two of results, and then have to wait awhile to take my next dose. And since it would make me so sick to take it without a full meal, I really couldn't take it as often as I needed to. That's why I got put on the Timespan. Overall, I spend more of my day medicated while on the Timespan than the instant, but it's a lot less predictable. |
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"Thanks for this!" says: | FREDH (12-29-2015) |
12-30-2015, 06:38 PM | #8 | ||
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Does anybody else notice strange sleep issues with the Mestinon?
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"Thanks for this!" says: | FREDH (12-31-2015) |
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