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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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10-08-2015, 03:14 PM | #1 | ||
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Hi all,
I have been adding more dosage of Mestinon for some time now. Started at 3 x 60 per day. Now up to 6 x 60. I went to the Nuro last week, and they suggested I try the 180 Timespan, and drop 1 of the evening 60 mg. I have and seems to be better. Have any of you used this Timespan, and if so how were you results. Thanks FREDH |
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10-08-2015, 08:04 PM | #2 | ||
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Good luck! |
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"Thanks for this!" says: | FREDH (11-17-2015) |
10-08-2015, 09:36 PM | #3 | ||
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Quote:
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"Thanks for this!" says: | FREDH (10-09-2015), juliejayne (10-09-2015) |
10-09-2015, 08:00 AM | #4 | ||
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Later -FREDH |
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10-10-2015, 10:37 AM | #5 | ||
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3 x 60 + 2 x 180 is 540 mg. I am on 6 x 90 mg = 540 mg, and that is not enough, probably going to have to increase to 6 x 120 = 720 mg total. In actual fact the total per day is not really so important, because of the short half life of this medicine. What is more important is to have the needed level at regular intervals. Every 4 hours is the most common, but that can be as often as every 3 hours, or as long as every 6 hours. |
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"Thanks for this!" says: | FREDH (10-12-2015) |
10-10-2015, 10:42 AM | #6 | ||
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Oh, and Timespan is designed to give you the same effect that 60 mg every 4 hours would give you. The idea being that you take it late at night and it covers you until you wake the next morning, so from 12 until 9.
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"Thanks for this!" says: | FREDH (10-12-2015) |
10-12-2015, 02:54 PM | #7 | ||
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I got the idea somewhere, that the most dosage taken per day should only be around 360 to 400. Thanks for this. Like you say it wears off in 11/2 or 2 hours anyway. Thanks --FREDH |
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10-13-2015, 03:21 AM | #8 | ||
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Translated from Dutch manufacturers information sheet;
Recommended dose is 30-60mg 3-4 times per day (480mg) If needed increased to 5 - 20 (yes 20) x 60 mg per day! 20 x 60 = 1200mg per day. |
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"Thanks for this!" says: | FREDH (11-17-2015) |
10-14-2015, 08:05 PM | #9 | ||
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Same perspective as Julie on Mestinon dosage. I'm at 540/day and my neuro said I could go up more if needed. My neuro is ok fine with the 2 Timespan/day - I take one in the morning and one in the evening. My digestive system seems to tolerate better than taking more of the 60 mg tabs. Take care
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"Thanks for this!" says: | FREDH (10-15-2015) |
10-15-2015, 06:05 AM | #10 | ||
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I tried it but I didn't really like it.
Now I'm on 5 - 7 x 70 normal mestinon. Dosage depends on how I feel and sometimes I take around 8 pm, 10.30 pm (in bed) and other days I take 6, 8, 10 pm so it's mostly the evenings that make the difference in how many times I take it The timespan made me feel weird and jittery muscles. |
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"Thanks for this!" says: | FREDH (10-15-2015) |
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