Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
Reply
 
Thread Tools Display Modes
Old 10-19-2015, 04:17 PM #1
scrubbs scrubbs is offline
Member
 
Join Date: Nov 2009
Location: las vegas, nv
Posts: 181
10 yr Member
scrubbs scrubbs is offline
Member
 
Join Date: Nov 2009
Location: las vegas, nv
Posts: 181
10 yr Member
Default worsen

Has anybody ever have taking mestinon worsen their symptoms?
scrubbs is offline   Reply With QuoteReply With Quote
Old 10-19-2015, 04:37 PM #2
scrubbs scrubbs is offline
Member
 
Join Date: Nov 2009
Location: las vegas, nv
Posts: 181
10 yr Member
scrubbs scrubbs is offline
Member
 
Join Date: Nov 2009
Location: las vegas, nv
Posts: 181
10 yr Member
Default 1 tablet worsen

I meant 1 tablet of mestinon worsening their symptoms? Like taking a tablet one day and feeling worse then waiting a day or two and taking another tablet?
scrubbs is offline   Reply With QuoteReply With Quote
Old 10-20-2015, 07:22 AM #3
juliejayne juliejayne is offline
Member
 
Join Date: Apr 2014
Location: Dordrecht, Netherlands
Posts: 225
10 yr Member
juliejayne juliejayne is offline
Member
 
Join Date: Apr 2014
Location: Dordrecht, Netherlands
Posts: 225
10 yr Member
Default

Taking 1 (60mg?) tablet of Mestinon will have an effect within 30 minutes, and it will be out of your body within 6 hours.

If one tablet is making you feel worse.... go back to your Doctor. 1 tablet should not be enough to be an overdose, but if it is making you worse then it is clearly not working for you.

That may mean that you don't have MG. Or it might mean that you need a different medication. See you doctor.
juliejayne is offline   Reply With QuoteReply With Quote
Old 10-20-2015, 11:05 AM #4
scrubbs scrubbs is offline
Member
 
Join Date: Nov 2009
Location: las vegas, nv
Posts: 181
10 yr Member
scrubbs scrubbs is offline
Member
 
Join Date: Nov 2009
Location: las vegas, nv
Posts: 181
10 yr Member
Default positive

Had my blood work done last month. I have not been taking mestinon for some time now. Blood work came back positive when I went to UCLA last month so was told to start taking it again.
See a new neurologist next week now that I am back home. Maybe he may have some answers but the fact is I took a single mestinon on 3 different days that promoted trouble chewing and other symptoms including some difficult breathing.
High probability that this has never happened with a person with a positive diagnosis.
scrubbs is offline   Reply With QuoteReply With Quote
Old 10-20-2015, 01:43 PM #5
ErinBear ErinBear is offline
Member
 
Join Date: Jul 2014
Location: California
Posts: 162
8 yr Member
ErinBear ErinBear is offline
Member
 
Join Date: Jul 2014
Location: California
Posts: 162
8 yr Member
Default

It might be that you need a different dose. My understanding is that having too much Mestinon can create problems, and a lower dose can work just fine. Perhaps a whole tablet is too high a dose in your case. When I started taking Mestinon, my doctor had me begin with 1/4 tablet. It might be worth asking your physician about trying a smaller dose to see if that would be effective. Then again, a different medication altogether might be better for you, too. I hope the doctor can give you some good advice when you see him/her.

Best wishes,
ErinBear
ErinBear is offline   Reply With QuoteReply With Quote
Old 10-20-2015, 04:01 PM #6
scrubbs scrubbs is offline
Member
 
Join Date: Nov 2009
Location: las vegas, nv
Posts: 181
10 yr Member
scrubbs scrubbs is offline
Member
 
Join Date: Nov 2009
Location: las vegas, nv
Posts: 181
10 yr Member
Default thanks

thanks, hope new neurologist will have some answers.
scrubbs is offline   Reply With QuoteReply With Quote
Old 11-03-2015, 10:31 AM #7
TXIzzy TXIzzy is offline
Junior Member
 
Join Date: May 2015
Posts: 11
8 yr Member
TXIzzy TXIzzy is offline
Junior Member
 
Join Date: May 2015
Posts: 11
8 yr Member
Default maybe not the mestonon at all

Quote:
Originally Posted by scrubbs View Post
Had my blood work done last month. I have not been taking mestinon for some time now. Blood work came back positive when I went to UCLA last month so was told to start taking it again.
See a new neurologist next week now that I am back home. Maybe he may have some answers but the fact is I took a single mestinon on 3 different days that promoted trouble chewing and other symptoms including some difficult breathing.
High probability that this has never happened with a person with a positive diagnosis.
My hubby has been dealing with MG for almost a year...He has tested positive,started with mestonon and is now on CellCept. The mestonon only took care of the drooping eyelid, while he needed the stronger meds for the double vision. It just seems to me that if your symptoms are worse it is probably the MG itself....the one thing we have found about this disease is that it is very unpredictable, and no two people are even the same. But you may have to suggest something stronger. Also several people here said how important it is to check the B 12. He was checked for that and it was low borderline, so he is on pill for that also. Hope this helps.
TXIzzy is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Drug Goes From $13.50 per Tablet to $750. Overnight! DejaVu Medications & Treatments 16 10-30-2015 05:18 PM
Windows Tablet and Phone EnglishDave Computers and Technology 10 07-14-2015 04:49 PM
Someday I will get a tablet!! MelodyL Computers and Technology 3 12-29-2011 03:42 PM
HP tablet what do you know? Dejibo Computers and Technology 3 07-15-2011 08:56 AM
forgot to take tablet Melina Trigeminal Neuralgia 2 08-11-2008 06:48 AM


All times are GMT -5. The time now is 06:01 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.