I've told my story previously... but basically I am newly diagnosed. My neuro and opthamologists misdiagnosed me with multiple cranial nerve palsies and it took my constant freaking out for the neuro to finally schedule me for the Myasthenia Gravis blood test. He laughed and said he was sure I didn't have it and for my "peace of mind," he would set it up. 3 1/2 weeks later, I got the results and I am positive. He prescribed me 20mg of Prednisone only.

Within a few weeks, my symptoms have rapidly spread from severe double vision and blurriness to facial muscles, my tongue, my throat muscles and my arms and shoulders. I can live with everything except the throat muscles. I am having trouble swallowing and in the past few weeks, I have had 3 incidents of choking, usually going without breath for minutes while choking, Food just stops in the middle of my throat and I'm unable to swallow it or spit it up.

My primary care physician questioned why the Neurologist didn't give me Mestinon and gave me a prescription for 60mg, twice a day. I take it before breakfast and dinner and it gives me a few hours where I can swallow my food. I also have issues swallowing mucus and saliva at times, which kept me up at night. The primary care then prescribed the extended release Mestonin, but is adamant that it "lasts for 24 hours" and also can not be taken with the regular version. I am now having issues throughout the entire day of swallowing problems and it's almost impossible for me to talk by early evening. I have called and begged for more, I even printed out the medication brochure and highlighted the proper dosages and average use. Now, he won't return my calls at all. The neuro refuses to up the dose because he said he didn't prescribe it.

I have an appointment with an MG specialist, but not until the second week of December! So what do I do? Will I have to go to the emergency room of the hospital where that specialist is to get quicker attention? His office said the specialist can not prescribe anything until he sees me. I even described my horrible swallowing issues and choking. I also have difficulty breathing at times.

I do not understand why this is all being taken so lightly by the doctors.