I recently was diagnosed with MG. After crisis intial tx was Prednisone 60MG daily for 3 weeks. I literally had a psychotic break, no sleep, no filter on things I said to people was readmitted to MGH and spent week in Psych unit detoxing from Prednisone. This is a nasty drug and needs to be carefully monitored. I have been treated with MEstonin and two sets of infusions and for the last month my symptoms have been negliglible. I developeda severe rash all over my body a week ago and it tis itchy and very uncomfortable. So I am on a medication holiday. Stopped the Mestonin. However the heavy head and extreme fatigue symptoms hve sarted to re occur. I have also found that CellSept is not paid for by my Medicare/United Healthcare Supplemental insurance and that there is a generic. Has anyone had experience wih generic or suffered a horrible rash as a hangover from the prednisone?

I got an ezcema like rash on my legs after my loading dose of IVIG In the hospital... it appeared about a week or so later if I remember correctly. .. Good luck!

finedavid, Do you know what brand of IVIG they used? Sometimes you have to switch to another one in order to not have an adverse reaction.

Yeah, Pred can cause steroid psychosis in some people. Even a very small dose does that to me.

Contact the manufacturer of Cellcept. They might have a financial assistance program. Or call your insurance company and tell them that you can't do steroids, etc. and NEED to have it to survive!!!

How are you doing, Lily?

Annie