Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


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Old 12-04-2015, 11:19 PM #1
MachinistGuy MachinistGuy is offline
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Join Date: Dec 2015
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MachinistGuy MachinistGuy is offline
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Join Date: Dec 2015
Posts: 1
8 yr Member
Default New to the forum

Hey everyone,

I'm Joe, 29 from Canada. I've been diagnosed with MG about 3 months ago after one morning I woke up and was seeing double. Was strange since I had good vision. Went to eye doctor, prescribed glasses which work great. sent a letter off to the ophthalmologist. Went for a MRI and a blood test. the blood test came back positive for something ? that's when the doctors and I learned I had MG.

I'm now waiting to see a neurologist that specializes in MG.

the droopiness in my eye is pretty much gone, my arms get weak and just quickly. legs also kind of pain... kind of confused about the whole thing really. Family tries to understand... thought I would hop on here and meet some other people who are going through the same thing..


Nice to meet everyone

Joe .. sorry for the grammar.
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Old 12-07-2015, 05:07 PM #2
FREDH FREDH is offline
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Join Date: Jul 2012
Location: San Antonio, Tx
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FREDH FREDH is offline
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Smile Joe 29

Quote:
Originally Posted by MachinistGuy View Post
Hey everyone,

I'm Joe, 29 from Canada. I've been diagnosed with MG about 3 months ago after one morning I woke up and was seeing double. Was strange since I had good vision. Went to eye doctor, prescribed glasses which work great. sent a letter off to the ophthalmologist. Went for a MRI and a blood test. the blood test came back positive for something ? that's when the doctors and I learned I had MG.

I'm now waiting to see a neurologist that specializes in MG.

the droopiness in my eye is pretty much gone, my arms get weak and just quickly. legs also kind of pain... kind of confused about the whole thing really. Family tries to understand... thought I would hop on here and meet some other people who are going through the same thing..


Nice to meet everyone

Joe .. sorry for the grammar.
Joe,
Nice to have you with the group, if you have to have MG. I was diagnosed about 8 years ago. I heard if you have it for 5years or so, it usually doesn't get much worse. Well in my case it did. Hope you have better luck. Mine started with droopy eye--chewing, and some speech problems. I had my first crisis last month, and now have neck muscle problems, drooping eye lid, and fairly severe arm weakness. I am on Mestinon 90mg every 2 hrs, and still some problems. Hope you don't go there.
Stay with this group, they will help you. Lots of know how on this board.
Good luck
FREDH
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