They have to say on the lab results form where the blood was sent. Labcorp usually does their own AChR testing.

Yes, MuSK is only done through Athena (so far). Although, they do run it in the UK, too, at Oxford.

If you want to do research, do it at WUSTL or some other reputable site, such as PubMed or Medscape.

They don't have patient stories or anecdotal info, though, like talking about how liquids we drink can shoot out of the nose when bulbar muscles are weak or holding your chin down in order to swallow food well.

Neuros are an odd bunch. They don't like patients asking them too many questions or acting as though we know more than they do. But they are also often slow to diagnose, and that is beyond frustrating. So we just fold our hands on our laps and wait for them to make up their minds?

My first antibody test showed almost above normal. The next one, a year later, was above normal. So, yes, numbers can be on their way up.

I hope you can watch a good movie or whatever else you like to do. Doctoring too much, or thinking about doctoring, does not make for a great life. Believe me, I've done more doctoring than most and I will not waste another second on that process if I don't have to!

You'll get answers. And then comes the daunting task of deciding upon a treatment.

Annie