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-   -   Pyridostigmine/Mestinon limits (https://www.neurotalk.org/myasthenia-gravis/234317-pyridostigmine-mestinon-limits.html)

AnnieB3 05-04-2016 07:34 PM

It seems that you are having a positive effect from the drug. The drug is not, however, benign for those with or without MG/CMS/LEMS.

http://www.ncbi.nlm.nih.gov/pubmed/1757242

http://www.fda.gov/downloads/drugs/e.../ucm133154.pdf

http://www.medsafe.govt.nz/profs/dat...estinontab.pdf

http://neuromuscular.wustl.edu/mtime/mgrx.html

Have your doctors done enough testing to rule MG in or out?

Annie

TXIzzy 05-09-2016 11:39 AM

off mestonon
 
My hubby was only prescribed Mestonon for about 6 months, and was told that it only really works to droopy eyelid. He was also started on cell-cept, and has been on that a year. His eyesight is great now, and has some generalized weakness,etc. He has been very lucky that he has not had to be hospitalized for crisis....hoping for the best.


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