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| Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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05-04-2016, 07:34 PM
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Grand Magnate
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It seems that you are having a positive effect from the drug. The drug is not, however, benign for those with or without MG/CMS/LEMS.
http://www.ncbi.nlm.nih.gov/pubmed/1757242 http://www.fda.gov/downloads/drugs/e.../ucm133154.pdf http://www.medsafe.govt.nz/profs/dat...estinontab.pdf http://neuromuscular.wustl.edu/mtime/mgrx.html Have your doctors done enough testing to rule MG in or out? Annie |
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05-09-2016, 11:39 AM
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#12 | ||
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Junior Member
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My hubby was only prescribed Mestonon for about 6 months, and was told that it only really works to droopy eyelid. He was also started on cell-cept, and has been on that a year. His eyesight is great now, and has some generalized weakness,etc. He has been very lucky that he has not had to be hospitalized for crisis....hoping for the best.
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