Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
Reply
 
Thread Tools Display Modes
Old 04-14-2016, 09:45 PM #11
Hopeless Hopeless is offline
Senior Member
 
Join Date: Jun 2013
Location: USA
Posts: 1,232
10 yr Member
Hopeless Hopeless is offline
Senior Member
 
Join Date: Jun 2013
Location: USA
Posts: 1,232
10 yr Member
Default Hit the jackpot

Quote:
Originally Posted by kiwi33 View Post
I am glad that I managed to help a bit.

It sounds to me that your endocrinologist is right on the ball - excellent clinical judgement and excellent inter-personal skills is a great combination .
Yep, kiwi, I really hit the jackpot when I was sent to my endocrinologist by my sis-in-law. He is so super, words are inadequate.

It is funny because my sis-in-law was afraid that I may not like him. Well, it is now 9 years later and I tell her all the time how grateful I am to her for the recommendation.

We all know that no matter how WE feel about a particular doc, they may NOT be a good fit for someone else. She knows I am VERY picky about my docs and that was her concern. I am so very happy she gave me his name.

Thanks again for your postings.

I feel I have hijacked Lily7's thread. I hope she does not hold that against me. It really was not my intent.
Hopeless is offline   Reply With QuoteReply With Quote

advertisement
Old 04-14-2016, 10:08 PM #12
Hopeless Hopeless is offline
Senior Member
 
Join Date: Jun 2013
Location: USA
Posts: 1,232
10 yr Member
Hopeless Hopeless is offline
Senior Member
 
Join Date: Jun 2013
Location: USA
Posts: 1,232
10 yr Member
Default

Hi Annie B,

I feel like I have hijacked Lily7's thread. My apologies to ALL for that. Some quick comments and then I will return the thread to Lily.

They test my thyroid fairly regularly and it always comes back normal. B12 tested not long ago and also normal but lower than some recommendations I have read here on NT. I even considered my parathyroid glands as a potential culprit but that also came back normal. (Suspected that not just on symptoms but also on a few slightly elevated calcium levels which have subsequently come back lower.) Vitamin D (the complete test) does come back low and I take D3 for it. It will be tested again in June.

No, on the brain MRI. Have had numerous MRI's but all of thoracic spine and lumbar spine and one of wrist when something exploded inside of it and blew it up the size of a basketball. (Slight exaggeration.)

The one body system that seems to be the BEST I have is my digestive system. NO stomach or intestinal problems of any nature. Very fortunate there.

My insulin needs tweaking every now and then, but my diabetes is considered well controlled. A1C's run between 6.2 and 6.5 MOST of the time. Not to say that they never change, but medication adjustments are made when they do change. (I see my endocrinologist every 90 days without fail.) Diet is strictly followed except on special occasions like my birthday. I don't go crazy and have cake but I do have my favorite meal, still carb controlled but slightly higher than normal for me. On my last birthday, I was BAD and ate 3 hush puppies that came with my meal. I buy one loaf of bread a YEAR, put it in the freezer, and usually have to throw some of it out at the end of the year.

Thanks again for your help and your posts. Thanks to Lily for sharing her thread with me.

See you on other forums and threads.
Hopeless is offline   Reply With QuoteReply With Quote
Old 04-15-2016, 02:11 AM #13
anon6618
Guest
 
Posts: n/a
anon6618
Guest
 
Posts: n/a
Default

I don't know it it is said already, but please all be aware steroid induced diabetes can give you different lab results, it is not comparable to normal DM 2! If you take your prednisone in the morning, your fasting glucose level can be quite within normal range. For me it was even a bit low (without any DM medications).
It is somewhere between 1 - 4 pm hyou should test your glucose level.
Especially if you eat around 1 pm, test it 3 pm.

About alt day p, I try it when I want to -and can- taper down.
Now for example, I take 16.25 on Tue, Thu, Sat and 15.625 on other 4 days. I really don't give anything about docs thinking this is such a tiny dose difference it doesn't mean anything. I know my body, and after over 6 years over 0.5 mg/kg daily, 6 years of war and disaster caused by P, I rather take it very slowly. Adding an 'alternive' day when I feel it's possible. I do feel worse at the lower dose days the first week especially.
After a few weeks everyday 15.625 I'll probably start 1 day 15 a week and slowly go to 15 mg every day. That would be so awesome if I can reach that.
  Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Movies: The Theory of Everything Diandra Books, Movies, Music and TV Talk 6 01-04-2015 06:51 PM
What about this theory? lurkingforacure Parkinson's Disease 14 11-06-2011 02:20 PM
spoon theory Courtw84 Reflex Sympathetic Dystrophy (RSD and CRPS) 7 02-27-2010 11:09 PM
I have a theory about DBS. Jim091866 Parkinson's Disease 0 07-13-2008 05:48 PM
311 theory towelhorse Thoracic Outlet Syndrome 0 08-27-2007 05:29 AM


All times are GMT -5. The time now is 02:01 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.