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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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I saw my MG neurologist and am starting cellcept and I am reducing my prednisone dose. 😄
Here is where I have a question --- Instead of taking 40 mg of prednisone each day, my neurologist said to make 60 mg on alternate days. OK I thought, I will try this. My other health issues, colitis and diabetes went crazy nuts. I indefinitely felt better on the prednisone days and worse on the non prednisone days. I saw my General doctor, who manages my diabetes and colitis and he told me to stop the alternating day prednisone and just take 30 mg each day. He said the the swing of ON and OFF was too harsh for me. I have done this and I feel better but I wonder what my Neuro is going to say. I don't understand the theory behind alternating days, especially at high does. I welcome your thoughts and experiences. |
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