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| Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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06-15-2016, 08:56 AM
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Junior Member
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Hello All
How many of you are registered with the MG Patient Registry? It is open to US MG patients 18 and over and is considered one of the best tools we have to promote and sponsor clinical trials. All data collected remains confidential and is updated twice a year. If you have registered thank you for doing so. If you have not check out the link below and help all MG patients by getting on board. Vision of the MG Patient Registry | MG Registry |
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06-30-2016, 04:04 PM
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Grand Magnate
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I wonder what else they use this information for? I tend to shy away from things such as this due to the fact that we're so "tracked" already!
 Thanks for bringing this up. I'm sure that it could help with new drug trials, etc. Annie |
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MG Patient Registry
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