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question about mestinon--do not have MG

 
 
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Old 07-06-2016, 03:54 PM #5
AnnieB3 AnnieB3 is offline
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Join Date: Feb 2009
Posts: 3,306
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AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
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What did your neuro say to stop? The thyroid med?!! Why? Being between 1 and 2 for TSH is ideal. It wouldn't cause fatigue if it were at that level.

There are MANY causes of fatigue/sleepiness. A thyroid condition is only one of them. MG is another.

One of the first signs of MG is needing to take a nap.

A neurologist is not an endocrinologist. They shouldn't act as one either. Going off of a thyroid med can be dangerous! In fact, that alone could cause weakness and put someone into a MG crisis!!!

There are MG experts at Washington University. Please find one!

I'm sorry you live so far from care.

Annie
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